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April 17- World Haemophilia Day
World Haemophilia Day is annually celebrated on 17 April. The day marks the birthday of Frank Schnabel who was the founder of World Federation of Hemophilia (WFH). He died of AIDS in 1987 as a result of contaminated blood products. This year world observed 23rd anniversary of World Haemophilia Day. Haemophilia is a major disease and its patients are found in almost part of the world. Though, not many people are still properly aware of haemophilia which is basically a blood disorder, efforts are being made to educate masses about deadly effects of this little known disease. WHO has already pronounced this disease as a silent killer.
On World Haemophilia Day, various events are organized to promote a global effort to secure appropriate care and treatment for haemophilia. This disease is believed to be the oldest known inherited bleeding disorder caused by a defect in the genes. There is no certain social group or age category which is particularly prone to this disease. The sickness can affect anyone irrespective of his social background or nationality. That gives haemophilia a very dangerous outlook. It is a genetic problem passed on by an affected father to his offspring at birth. The recipient then becomes a carrier of the genes and there are high chances of him/her passing the defective gene to future generations.
Future does not look too bright as far as haemophilia is concerned. More number of people are expected to succumb to this disease about which there is very little information and awareness. Lack of treatment can result into disability and possible death. Most of the haemophilic patients are susceptible to viral infections like hepatitis B, hepatitis C and AIDS that further complicates the case. Haemophilic patients constantly need transfusion of blood. As of now, there is no permanent cure for this disease however, with the help of timely treatment and information, situation can be managed. Introduction of new life saving drug AHF (Anti Haemophilic Factor) is proved helpful in reducing haemophilia. On April 17, healthcare communities and organizations try to raise awareness of bleeding disorders and emphasize the importance of comprehensive care in haemophilia health care delivery.
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